tag:blogger.com,1999:blog-3411742878167645288.post3047757859679219254..comments2023-10-24T00:59:38.516-07:00Comments on Hope for Baby Bennett: The good, the bad and the uglyAmy Bennetthttp://www.blogger.com/profile/06256967321013244018noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-3411742878167645288.post-54032893102480913572010-06-17T11:00:15.515-07:002010-06-17T11:00:15.515-07:00Still Praying!!!! You are doing an amazing job! Yo...Still Praying!!!! You are doing an amazing job! You might feel like you may lose your mind if things go as you'd like them not to go but I know that God gives us the strength we need just when we need it and it's so nice that we don't have to rely on our own strength! <br />Love and Hugs,<br />Sharon LewisSharon Lewishttps://www.blogger.com/profile/01231684734686537227noreply@blogger.comtag:blogger.com,1999:blog-3411742878167645288.post-74989368854614307242010-06-15T18:35:33.126-07:002010-06-15T18:35:33.126-07:00Oh Amy, Two steps forwards is met with one and a ...Oh Amy, Two steps forwards is met with one and a half steps back. I can't help but stress what Sara said. LJ's heart condition is no where the extreme that Bodie's is. When I wanted LJ's surgery sooner than later after it was clear that balloon catheders weren't working, the Dr's were wanting to wait MONTHS! The cardiologists reminded me that LJ wasn't the worst case they had now. But I had to remind them that LJ is the worst case that I had to deal with. That I wanted him well and if there was a surgery date open then I wanted it. We got the surgery week we were wanting. Just as Sara said, the cardiologists are great people who do amazing things but they deal with so many kids that it is easy for them to forget that they are kids more than just patients. Of course, if they feel it would rise Bodie's health or life by going into surgery now, then that is a good excuse. But lift your voice and be heard.Rebekah Wilsonhttps://www.blogger.com/profile/16619348949480490768noreply@blogger.comtag:blogger.com,1999:blog-3411742878167645288.post-26438185404443567992010-06-15T14:22:15.066-07:002010-06-15T14:22:15.066-07:00My prayers and love - I've tended to think of ...My prayers and love - I've tended to think of this as Bodie's journey but it is also Sierra's too. Love to each of you.Chris and Karenhttps://www.blogger.com/profile/01453141582047334768noreply@blogger.comtag:blogger.com,1999:blog-3411742878167645288.post-6459978668677136182010-06-15T07:35:07.441-07:002010-06-15T07:35:07.441-07:00My darling Amy.
I will and have been praying for...My darling Amy.<br /><br /> I will and have been praying for every prayer request you have. Bodie is "my love" and I will do my part to help your family. I will also pray a lot more for sweet Sierra. She really is a sweet and beautiful girl. God bless you all, and thank you for allowing us to be part of your journey (to recovery). I believe for great things for my Bodie. May God's hand be upon him, ALWAYS.<br /><br />Much Love,<br /><br />NairiAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3411742878167645288.post-38025918953597860512010-06-15T03:53:54.321-07:002010-06-15T03:53:54.321-07:00Dearest Amy,
This journey has gone on much longer...Dearest Amy,<br /><br />This journey has gone on much longer than anyone could have anticipated. I know you are thinking you're going to lose your mind. And maybe you will for a brief moment or two, but then you will find within yourself and those around you the ability to face another moment. Don't think about facing another day...just the next hour. And soon enough, those hours will add up to one day, then one week...and so it goes for a mother when her child is in the hospital. You can do this! Your faith is strong and it will carry you as long as it takes. <br /><br />The other thing I wanted to say is to be sure to advocate with the cardiologists and infectious disease doctors about how much this back-and-forth is affecting not only you, but your daughter too. I found that often the doctors only saw Everett as a sick belly or a very small baby. They didn't see the family that was aching and falling apart behind him. When they wanted to keep him at CHLA until July without considering surgery, I told them they would HAVE to come up with another option because they were ripping my family, my marriage, my life, my child apart at the seams. Once I said this, they finally saw Everett as part of a family, who were just as "sick" as he was. And then started to listen, and they did surgery two weeks later. If you want Bodie home, tell them. Tell every doctor. Say it as often as you need to. They need to know that you and Dusk and Sierra ache and are "sick" too. <br /><br />I sit with Bodie in my heart everyday and only wish that I could do more. You are strong. He will come home. <br /><br />Sara BollingerAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3411742878167645288.post-5960266168955874622010-06-14T22:41:08.049-07:002010-06-14T22:41:08.049-07:00AMY -- I AM here for you, let me know when you wan...AMY -- I AM here for you, let me know when you want me up there!!! Lots of hugs to you!!! SaraAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3411742878167645288.post-54323016720939284372010-06-14T22:29:28.993-07:002010-06-14T22:29:28.993-07:00I will pray!! And, I will pray for Sierra. This ...I will pray!! And, I will pray for Sierra. This must be so difficult for her and for you guys! I would come sit with Bodie if I could but I have my own heart baby to care for.Nicolehttps://www.blogger.com/profile/08750687997109727558noreply@blogger.com