tag:blogger.com,1999:blog-3411742878167645288.post5772687561167837685..comments2023-10-24T00:59:38.516-07:00Comments on Hope for Baby Bennett: A family dividedAmy Bennetthttp://www.blogger.com/profile/06256967321013244018noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3411742878167645288.post-65920757187819622412010-06-28T15:29:22.340-07:002010-06-28T15:29:22.340-07:00So glad he is doing well!! Still praying for him ...So glad he is doing well!! Still praying for him and for you and the rest of the family. Love that smile<br /><br />Blessings to youAngelhttps://www.blogger.com/profile/16897959459004087638noreply@blogger.comtag:blogger.com,1999:blog-3411742878167645288.post-65198744824544446872010-06-28T07:30:08.341-07:002010-06-28T07:30:08.341-07:00Bodie's smile just melts me too, and you, my l...Bodie's smile just melts me too, and you, my lovely Sister in the Lord, are too precious for words. I weep and pray, rejoice and pray and love you with all my heart.Chris and Karenhttps://www.blogger.com/profile/01453141582047334768noreply@blogger.comtag:blogger.com,1999:blog-3411742878167645288.post-85166612965892490852010-06-28T06:22:58.183-07:002010-06-28T06:22:58.183-07:00Hi Amy,
I just stumbled upon your blog; I am the ...Hi Amy,<br /><br />I just stumbled upon your blog; I am the Mom of three, my youngest is 7 months and has HLHS. Just having read bits of your story, I wanted to share this: my daughter presented with bloody stools around 4-6 weeks. I will give you the short story which is that ultimately she was diagnosed with cow's milk protein intolerance, so I have been dairy free. BUT, after her Glenn at 4 months, the blood had still not subsided so the GI team in Boston suggested that I can the breastmilk and go with straight Neocate formula; that, coupled with the NPO status prior to surgergy did seem to get rid of the bloody stools, but not Cora's general fussiness while eating, inability to take more than 50-60 ccs at a time, and very poor weight gain. Finally, when we got home from the hospital and we started beefing up her formula to 30 cals/ounce, things got really bad, and then I realized the culprit: polycose. Are you using it? No one has signed off on my theory, but the NP at Children's Hospital said lots of their cardiac patients can't tolerate the polycose. And, when you think of it, breastfed babies who get too much foremilk which is really high in lactose have lots of GI discomfort and GI irritation; why not with polycose (which is simply glucose powder)? Hope I am not overstepping or discountin the parts of your journey I don't know about, but if I can save one more family from the angst that we experienced.... Since Cora's Glenn, she has been exclusively breastfed and has posted her best gains since birth (albeit she still weighs a slight 13 pounds!) Good luck.Hannahhttps://www.blogger.com/profile/11222752030465409540noreply@blogger.comtag:blogger.com,1999:blog-3411742878167645288.post-17074063565655019082010-06-27T23:09:21.381-07:002010-06-27T23:09:21.381-07:00Dear Amy. Please know that you all are in our pray...Dear Amy. Please know that you all are in our prayers and thoughts EVERY DAY, every moment... sending you all loads of love. My Bodie, sleep with angels, baby. I miss you. God Bless. NairiAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3411742878167645288.post-21455192565913366042010-06-27T22:45:56.849-07:002010-06-27T22:45:56.849-07:00We continue to send love and prayers for Bodie and...We continue to send love and prayers for Bodie and your family. Thank you for your honesty - which is also inspirational. We pray God continues to carry your family through the hard times and blesses your family for faithfulness. Love, hugs and prayers, Bonnie & KerrsAnonymousnoreply@blogger.com