Ok world, here I am...
I have been meaning to update the blog for a couple of weeks now, but oh my, our lives have been SO busy! Good busy - I suppose it's that time of year, right? But definitely busy! Here's a little of what we've been up to...
Bodie had his regular appointment with his cardiologist yesterday and got a great report! YAY! HUGE sigh of relief for me! He has been having frequent episodes of tachycardia ever since the crazy fever/full body rash virus that landed him in the hospital in August. He used to have episodes of EAT as an infant, and had been on Propranalol (a beta blocker designed to bring his heartrate down) for it, but had been off the Propranalol for almost 9 months without any real issue before August. Since then, he's had 8 episodes that we know of (I know because he gets blue and really panty - and then I can confirm by putting my ear against his chest and listening, or just putting him on pulse ox). He was put back on Propranalol in August, but a very low dose. It was upped a tiny bit in September when we realized he was having another episode. It definitely helped with the duration of the episodes (now, instead of lasting a day and a half, they're just a few hours at most), but didn't seem to help with the frequency. You can imagine a heart that's used to beating at 90-100 beats a minute is not going to like being repeatedly thrown into 160-180 beats a minute. I was really concerned his heart function took a hit because of it. But thank God, that wasn't the case!!! His function looked better than it did in August and he has no concerning regurgitation in any of his valves. His cardiologist is upping his Propranalol by a fair amount to hopefully get the EAT under control, but other than that had no concerns! We're still on track for a Summer 2013 (!!!) Fontan, unless Bodie has other plans. The only other interesting note was that Bodie was so squirmy during the echo, the echo tech literally had to do part of the echo with Bodie standing up trying to reach the animals hanging off the ceiling! We were totally cracking up at him...
Other than that, we've been up to...
Talking a mile a minute
Oh.my.goodness can this kid TALK. He's stringing together 2 word sentences more and more, which is really fun. The other day, he pointed at this picture (hanging on our wall)
and said "Baby Cry" (like that's not the understatement of the century, right?) And...he can now say his own name! Click on this video to see him in action:
He also figured out how to unlock all of our babylocks in the kitchen cabinets. We're not talking he pulled with brute force and got the cabinets open (which is what Sierra finally did at 3). We're talking the stinking kid watched me do it, reached his little arm up and over the top of the cabinet, depressed the child safety latch and opened the cabinet. I was dumbfounded. I SO have my work cut out for me with this kid!
We've been doing more homeschooling with Sierra on the days she's not at school and she's really getting into it. We've been working really hard on her letters, which, let's just say, needed some serious work a few weeks ago. This is after only a couple of weeks of working hard on them:
Can you say I am one PROUD mama???
She's also started taking pics with my camera. I know, I am nutso to let my 4-year old anywhere near my beloved Canon SLR. But she's having fun. She took this pic of Bodie and I in bed the other morning - I just love Bodie's expression. He knows this whole sissy-getting-her-hands-on-the-camera thing is not going to end well. Ha.
In Bodie milestone news, he is LOVING the TWISP program and absolutely flourishing. Most days he can't even be bothered to say "bye bye" to me and give me a hug or kiss because he's already into playing with the cars and trucks. SO grateful for the program.
Oh, and he tried his first juice box last weekend. Not because I'm a good mom and have been denying him juice, but because Sierra's really never been much of a juice drinker, so we just don't have it around the house. Not that you can tell from this pic, but he totally dug it. Honest!
Crafts, Crafts and More Crafts
In conjunction with her school's letter of the week, we've been working on letter crafts at home. I posted about this on Facebook, but for those of you who have preschoolers, DLTK Teach is THE BEST craft site I've found. The letter curriculum is fantastic! The projects are super easy and fun. Last week, for the letter H we made a Habitat - Bodie painted the sky and Sierra painted the forest walls and floor:
(Please ignore Bodie's pink shirt - it's Sierra's "paint shirt" and she didn't want to wear it - since I knew he'd be painting, I figured why ruin another shirt when he could just wear hers?).
This week, for the letter I, we made an Igloo out of a styrafoam cup and plate, marshmallows and white frosting.
(I'll let you guess whose is whose. ;-))
Wow, I cannot believe Christmas is already around the corner! This year, we're planning on doing a RACK Advent Calendar (25 days of Random Acts of Christmas Kindness). I'm super excited to do it and can't wait to show Sierra what Christmas is all about. Stay tuned! In the meantime, here's a sneak peak at our family Christmas pic (pretty good for a camera set on auto-timer since we couldn't find a neighbor home to help us out! Ha!)
Love this update, especially the photos! So proud of both of your kiddos. Sierra did excellent on her Name and Bodie is such a super star. You need to fly out to WV and have him give Jake a lesson in speaking :) Love you all!ReplyDelete
I love, love, love the family photo!ReplyDelete
Oh my gosh... I have watched that video like 12 times- SO cute. BO-die, BO-die. Adorable. :) Love the family pic too! Are you blonder than last time I saw you?ReplyDelete
Great update! Sierra is rockin' it with her letters! That's awesome! I'm going to check out that website right now. I'm so glad you all had a good cardio appointment and that everything is going well.ReplyDelete
Love that Bodie! He cracks me up!!
And love the pic!
Yay for the great Cardi checkup! Bodie is so cute - so awesome that he is talking up a storm - need a video please! LOLReplyDelete
You have such a wonderful family =) Love to read your awesome updates! Blessings!!
Amy!! I love your blog...warms my heart so much!! Thanks for always encouraging me on mine...I appreciate your keeping me going...man oh man, this parenting thing is tricky, isn't it?!!ReplyDelete
You have very adorable children!ReplyDelete