Hope for Baby Bennett: The Breakup

Monday, July 9, 2012

The Breakup

Yesterday, Bodie ended a long (2 year +) and tumultuous (on again, off again, back on again and desperately needed) relationship with his beloved Sildenafil, the pulmonary hypertension drug better known as Viagra.

Bodie giving himself his last dose.

Mommy is thrilled (no more battles with the insurance company - you'd be amazed at how hard it is to get something approved for your 2-year old son to be able to breathe properly, considering most of the male population over the age of 60 has no issues obtaining it).

The cardiologist is happy (no sense in keeping him on a med he doesn't need anymore).

Let's hope Bodie's body is as happy as the rest of us.

Big day for our little man.

5 comments:

JennyJuly 9, 2012 at 12:04 PM
Woohoo! Go Bodie! One less med is always a good thing. :)
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AnonymousJuly 9, 2012 at 12:19 PM
Congratulations! I've seen your frustrated posts about the insurance company and his medications- one less thing you have to worry about!
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JanetJuly 9, 2012 at 12:36 PM
This is so exciting!!
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StefenieJuly 9, 2012 at 4:41 PM
Great news! Hope he does well off of it!
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The HandsJuly 9, 2012 at 6:21 PM
Wow! Bodie is getting so big and grown up! It's been awhile since I've checked in and seen how much he's really grown. What good news about ditching the drugs and going on vacation!

Amy, it's good that you are out there encouraging those who are facing a new diagnosis. I know that when our CHD kids were babies we supported each other for a long time going through all the surgeries, meds and feeding tubes together, but I think one of the best comments that I got on my blog was from a mom who's son with HLHS was 5 and she gave me some really reassuring words. Keep up the good work with your blog. Unfortunately mine has been lacking.
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The Chosen Mothers by Erma Bombeck

Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. Did you ever wonder how mothers of children with life threatening illnesses are chosen?

Somehow, I visualize God hovering over Earth selecting His instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger. "Armstrong, Beth, son, patron saint Matthew. Forrest, Marjorie, daughter, patron saint Cecilia. Rutledge, Carrie, twins, patron saint Gerard."

Finally, He passes a name to an angel and says, "Give her a child with cancer." The angel is curious. "Why this one God? She's so happy." "Exactly" smiles God, "Could I give a child with cancer a mother who does not know laughter? That would be cruel."

"But, does she have patience?" asks the angel. "I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she will handle it." "I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has it's own world. She has to make it live in her world and that's not going to be easy."

"But, Lord, I don't think she believes in you." No matter, I can fix that. This one is perfect. She has just enough selfishness." The angel gasps -"Selfishness? is that a virtue?"

God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take anything her child does for granted. She will never consider a single step ordinary. I will permit her to see clearly the things I see...ignorance, cruelty, prejudice...and allow her to rise above them." She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side." "And what about her patron Saint?" asks the angel. His pen poised in mid-air. God smiles, "A mirror will suffice."