Sunday, September 23, 2012

A heart weekend

Whew! What a weekend! This was the busiest weekend I can remember in a long time, and it was all about heart activities!

On Friday, the kids and I headed up to the Central Coast (about a 3 hour drive) to celebrate a very special little girl's first birthday! We ended up staying at her house for Bodie's first ever "heart slumber party". Bodie has always had a thing for Ella, and as you can see, that "thing" is still going strong. Enjoying our sleepover...
What's a heart kid slumber party without meds?!?

Then, on Saturday, we got to go to her birthday party to celebrate in style. It is always such a miracle to see any medically fragile child hit a birthday, but it's even more special when it's a family you've come to know and love, which we definitely have. It absolutely brought tears to my eyes to see Miss Ella May have her birthday cake!
We also had the joy of meeting up with another heart family at the party (Jayden has Shone's Complex and has also had multiple open-heart surgeries). The heart warriors:
Not to be outdone, Sierra had a BLAST with the little girls around her age! They ran around and had so much fun together!
Saturday, after the party, we headed back home for a special event on Sunday. About a year ago, we formed LA Heart Moms, a group of women I'd met during our various hospital stays, all of whom had kiddos with CHDs. It's a great group of women who have really been a wonderful support for me. There's nothing quite like meeting someone in person who has walked in your shoes and just "gets it."

Today, we had our first ever LA Heart Moms pool party - and everyone brought their kids. Oh.My.Goodness. AMAZING and so good for the heart to see all of these kids running around, swimming and just living their lives. You know, all the things you never dreamed you'd get to see your child do when your received your diagnosis?

Check.It.Out. 9 heart kids (two little dudes were seriously having NONE of the group pic). 19 Open-heart surgeries. The bravest kids I know.
And the most amazing (and exhausted) moms I know. Man, I love these moms!
We tried to get a pic of all the heart kiddos and their siblings, but it just wasn't happening. But, you get an idea of how many kiddos there were - lots of fun to be had!

 And at last, after 2 1/2 years of trying, I finally got a picture of Bodie and Townes where they're both smiling (you know, instead of Townes smiling and Bodie (aka "the angry blue version of Townes") screaming)! So excited. Love these boys. :-)


  1. you have beautiful kids and I really enjoying reading your blog!

  2. LOVE this post Amy!!! What an awesome weekend you had and the pics, oh my goodness...adorable!!! Love that you guys had a sleepover at the Becksteads- too cute! xoxo