Saturday, September 28, 2013

Better days ahead...

We don't know how far off they are, or what exactly they'll look like, but of this we are certain - we have better days ahead.

Last night, after having 5 different iv's attempted and being hit with enough meds to knock out a horse, our sweet boy sat up abruptly from a sound sleep in recovery, gave us a huge smile, tore the 02 off his face, mumbled something incoherently, threw himself back down on his bed and passed out again.
The next time he woke up, he gave me a huge smile, and said "I want to buy something." When I asked what he wanted to buy, he responded "Angry Birds!" Our son had never played Angry Birds prior to the picc line placement yesterday, when the Child Life specialist let him play it on her iPad to distract him. That was the LAST thing I expected to come out of his mouth. I love this kid's comedic timing. Always when I need it the most. 

By this morning, he was 100% back to normal and ready to play.
We spent the better part of the morning in the play room, where the volunteers marveled at what Dusk and I have already figured out. 
This kid is amazing. He has a true gift of finding joy in all circumstances (except for, as any of my faithful blog readers know, trying to put his underwear on correctly, which continues to be akin to asking him to dismantle an atomic bomb, apparently). But I digress. Seriously, it is incredible to watch this kid have this contagious zest for life, despite going through some pretty horrendous stuff. We could all use a lesson from him about how to find joy in all circumstances. 

The official word is that the infection cultured staph (NOT MRSA). Praise God! The recommendation of Infectious Diseases is 14 days of IV Antibiotics (starting today), followed by oral antibiotics. We were switched from the Vancomycin / Zosyn (which required approximately 120 minutes every 6 hours to administer) to Ancef (which requires less than 10 minutes every 8 hours). Can I get a Hallelujah?!? What portion of the IV drugs will have to be done inpatient, vs. what they will allow us to do at home with the picc line is up to the CT team. We should know more on Monday.

It has not escaped my attention that what we are now jumping for joy over (2 weeks of iv antibiotics) was devastating to us the day they admitted us. Absolutely puts things in perspective, and reminds me, like our son, that Dusk and I could work on finding joy in all circumstances. 

We had a little help in that arena today, both with visits yesterday from our sweet heart friend, Lucy, who came armed with love and presents for the kiddos, including a sweet doll that Sierra LOVES...
And lunch today with fellow heart mama Julia and her sweet daughter, Grace, who Sierra adores.
(Bodie may have been a teensy bit excited to leave the floor and go downstairs to eat lunch with the girlies.)

Thank you, Julia and Grace, for taking time out of your busy schedule to bring our girl up here. And Carrie and your sweet family, thank you for coming all the way up here to bring her home for us! We are so blessed to have so many people who love Sierra!

 Tonight, Please pray:
1. That Bodie continues to stay symptom free.
2. That he has no adverse reactions to the new antibiotics.
3. That CT Surgery decides to send us home to finish his course of antibiotics there; and that he doesn't catch any of the other nasty stuff going around the hospital on the cusp of cold and flu season.
4. That we can all remain patient while not knowing the specifics of an indefinite hospital stay.


  1. Praise God! I share your blogs with Michelle and we are both praying for you and your family. I pray that you can now have a time of rest and relaxation free from stress and worry.

  2. I missed your Friday blog and just read it - I was in tears , right there with you :( So happy to read this new post right after. He looks so great. Praying he's like my kids and doesn't remember the bad - only the good. Big hugs to you all

  3. All caught up and have read all the recent posts. will continue to pray for sweet Bodie and yay! that he was able to get off the floor for a bit the other day. I hope that he is able to go home. I will continue to pray for you and your family.
    Dear God, be with this family. breathe life into them and give them energy and strength for the days ahead. Help Bodie to be released from the hospital soon. Thank for the hospital staff and for all that they are doing for Bodie but home is where he would rather be. Give Amy patience and energy for the days ahead too. wrap your arms around her and let her know that it is okay for her to cry out to you and that you are there for her. Thank you for this family and for what an inspiration they have been to me. please continue to be with them and provide for them in their time of need. Amen.

  4. so happy to hear. he is a delight to see!

  5. Hi Bodie, See your pictures & reading Mom's latest blog really made me very happy! You look like you are having so much fun! If I ever have to go to the hospital again I want to have as much fun as you are having. We prayed for you yesterday in my Sunday school class. Everyone was happy to know that you are feeling better. Keep smiling! Love ya, Mister George in Annapolis

  6. Oh Amy, this is such wonderful news!

  7. Continuing to pray :-) glad for good news!!!

  8. Catching up on the blogs - so sorry to hear about the infection, but glad the news was good today - Praying for a speedy recovery and that the antibiotics do their job!