Sierra and her really good friend Isabella
The only thing better than one Cookie Monster cake is two (thank you teacher JuJu!!!)
My sweet big girl turned 3 today - I can hardly believe how fast the time has flown! My heart breaks a little for her that we can't give her a normal birthday, but we did the best we could. Since Bodie has been stable, we stayed away from the hospital all day today and just focused on Sierra. Big shout-outs to our friends Nairi and Michael, who sat with Bodie at the hospital today so that we could feel a bit more comfortable being at home!
We had planned to do a very small party for Sierra, with only 3 friends that she plays with every day at school anyway, since we didn't want to expose Bodie to any new germs. By the time we realized there was no way Bodie was going to home on Saturday, we just didn't have our act together enough to invite anyone else. So it ended up staying small - and it was really nice. Sierra had SO much fun with her little friends!
And in Bodie news, he's still looking good! Nice and stable! They tried to start his breastmilk feeds last night (he had been on TPN (an iv nutrition) and pedialite), but he didn't take to it very well, so they stopped his feeds late last night (he hasn't had an issue with feed intolerance in the past, but he's had a lot going on in the past few days, so we're hoping that's all it is). They put him on Reglan (a drug to help move food through the gut basically) and are going to try the breastmilk feeds again tonight. Hopefully, he'll tolerate it a bit better tonight. Other than that, all is the same. He's on a bit of nitric oxide (they had weaned him off of it yesterday, but then he started desatting a couple of hours later, so they put him back on - it's actually not the worst thing in the world since it tells us that his issues are not solely heart-rate related, so answers the question of whether he can get by with just a pacemaker or truly needs the new shunt - looks like he does in fact need the shunt).
Prayer requests for the next 36 hours or so:
1. Pray that Bodie tolerates his breastmilk so that he can continue to get some calories and stimulate his gut until surgery (he will be off of it for a few days after surgery, so it'd be nice to get some in now).
2. Pray that Bodie continues to remain stable and his sats stay nice and high and well within his range.