...how the journey to mend our son's broken heart changed our family forever...
Friday, April 30, 2010
This morning, for the first time in almost 2 months, I came in to see my sweet boy's face completely oxygen free! He is now completely on room air and has been satting 85-88 all day! I had been thinking in the back of my mind that it might be possible to bring him home not on oxygen this time, but I was scared to even say it out loud for fear of jinxing it. Praise God for this amazing miracle!!! How cute is he???
The biggest issue we're still dealing with at this point is the decision of whether to put a g-tube in vs. letting him continue to do thickened oral feeds. (In the picture, you can see an ng-tube in his nose - until they figure out what they're going to do with his feeds, they're feeding him through the ng tube.) We had a GI consult today where the doctor told us the tests they're planning to run next week to determine whether Bodie is indeed aspirating. God has given Bodie so MANY miracles in the past week, it feels greedy to ask for yet another one...but if you would please pray for one last miracle, I would really appreciate it. Please pray that the studies show NO aspiration and they let Bodie come back home on full nectar feeds. Given how much he likes to eat and how well he was doing with it, it would be great developmentally if they would continue to let him feed orally. Please, please pray for that!
Thank you for all of your continued prayers - we continue to be in awe of what we have seen God do through our little son this week.
And, in other "God news," at Sierra's well-child check today, the doctor asked her to identify different shapes and symbols on the eye chart. One of the symbols was a plus sign - Sierra looked at it for a second and then said "church!" (I think she thought it was a cross). I love it - she's already witnessing at 3 years old! :-)
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Wow, such great news! Thank God. He is so cute. I love him and have never even met him! I can't wait ♥ReplyDelete
My sweet Bodie, my little miracle! I love and miss you and you look so handsome! I am thrilled to see your eyes wide open. Sending you all my love and loads of prayers always... Sawyer and Hunter pray for you too. You are their "special prayer baby". God Bless You and sleep with angels. Much Love, NairiReplyDelete
Yay God! So, so happy to hear Bodie is off of the oxygen! Woohoo! We will keep praying for his nectar feeds. This is all so exciting, I love how God is working so many miracles in our sweet boys!ReplyDelete
Wow! Miracle after Miracle! What a mighty God we serve! Praying that little Bodie will be able to eat once again.. and praising the Lord that he is going to be able to go home without oxygen. How freeing that will feel!ReplyDelete
He looks so good Amy! He is like Ezekiel 24:26 -- "....and I will cause showers to come down in their season; there shall be showers of blessings" The Lord is raining on Bodie and we are celebrating His love!ReplyDelete
I am so excited! What an awesome blessing God is bestowing on this precious boy and his loving family! I can't wait to meet him. We continue to pray!ReplyDelete
Love you all~
Amy, I fought Jacob having a g-tube as well mainly because he loves to eat. He was not aspirating but he was very at risk for it from the reflux. They told us if he aspirated it could be life threatening. I have to say that despite the morphine reaction the gtube has not been as scary as I thought. He can still eat by mouth.ReplyDelete
I pray for you and Bodie and that he does not need one but if he does know that they are not forever nor as scary as you think. Love and prayers always!
He is beautiful and I wish I could kiss his little face! I am so excited by God's good works and hope he continues to amaze us all.ReplyDelete
He's adorable!!! I just want to hold the little guy. We will keep praying for the best for Bodie. ErinReplyDelete
These little guys/gals are amazing and an inspiration to us all! Can't wait for Townes and Bodie to grow up together. Love you all - Sara and FamilyReplyDelete
Awww, I forgot to mention how cute Sierra was with her wee witnessing. They are so honest at this age. I hope she continues to be a witness.ReplyDelete
My sweet Bodie. I pray that your GI "stuff" resolves quickly and with no difficulties, and that you get to come home to your mom, dad, and Sierra soon. I miss you, peanut! Praying for you daily! Keep getting better, sweet miracle! Sleep with angels tonight. Much love and God Bless You. NairiReplyDelete