Hope for Baby Bennett: Big man in the big desert

Monday, August 30, 2010

Big man in the big desert

After getting the all clear from Bodie's cardiologist on Friday, we were packing our bags for Palm Springs faster than you can say "are you crazy to travel with a hypoplast???" My parents have a place in Palm Springs (less than 2 hours from Bodie's hospital in case anyone was wondering!) and we have been anxious to get out there one more time before summer ended, so this weekend seemed like the best time to do it. We had a wonderful time! I do have to admit, it was our first time traveling as a family of 4 and let me tell you, it's a whole different ballgame than traveling with just one kid. Adding a second kid, who travels with a pulse ox, a scale, frozen breastmilk, formula, thickener and 6 different meds in 9 different syringes (not to mention the normal baby stuff) makes for a crazy trip. It will definitely take some getting used to, that's for sure! But it was a great weekend, with fun had by all, so we'll definitely take it!!!

Here's some pics of the fun...

All packed and ready to go

Aren't these eyes to die for??? (Have to click on the pic to see them up close)

Pretty big sissie with her dolly

Big sissie "modeling"

"Stick em up" (btw, this lovely overbite is his new look - it's what he does ALL THE TIME now -it's so funny)

The kid loved the pool

He was so proud of himself riding in the "boy big" stroller

So, I changed his diaper on the floor and left the room to throw the diaper out. This is how I came back to find him 10 seconds later. Too freaking cute.

All kinds of silliness

Yep, I'd say the weekend did him in!

5 comments:

AnonymousAugust 30, 2010 at 9:56 PM
God bless you all! xo: nairi
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JennyAugust 31, 2010 at 5:32 AM
Awww! Those pictures are adorable! I love your daughters tutu bathing suit. Too cute! So happy to hear that you had such a great weekend. :)
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StefenieAugust 31, 2010 at 5:36 AM
Glad you guys got the green light to take your trip. Looks like you had a wonderful time on your family trip. Yes, taking a trip as a family of four is much different than a family of three. Like you said it doesn't help when you have to haul all of the medical necessities too.

Sweet pictures! Love the napping one.
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JillianAugust 31, 2010 at 8:26 AM
I LOVE the pics!! So cute! :)

Wyatt has that same BBQ onesie..thank you Target! Hehe
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AnonymousSeptember 1, 2010 at 4:59 PM
i love you my baby and miss you so, so much. be well my bodie. you have the best parents God could ever bless you with! lots of hugs to sweet sierra too. xo: nairi n family
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The Chosen Mothers by Erma Bombeck

Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. Did you ever wonder how mothers of children with life threatening illnesses are chosen?

Somehow, I visualize God hovering over Earth selecting His instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger. "Armstrong, Beth, son, patron saint Matthew. Forrest, Marjorie, daughter, patron saint Cecilia. Rutledge, Carrie, twins, patron saint Gerard."

Finally, He passes a name to an angel and says, "Give her a child with cancer." The angel is curious. "Why this one God? She's so happy." "Exactly" smiles God, "Could I give a child with cancer a mother who does not know laughter? That would be cruel."

"But, does she have patience?" asks the angel. "I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she will handle it." "I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has it's own world. She has to make it live in her world and that's not going to be easy."

"But, Lord, I don't think she believes in you." No matter, I can fix that. This one is perfect. She has just enough selfishness." The angel gasps -"Selfishness? is that a virtue?"

God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take anything her child does for granted. She will never consider a single step ordinary. I will permit her to see clearly the things I see...ignorance, cruelty, prejudice...and allow her to rise above them." She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side." "And what about her patron Saint?" asks the angel. His pen poised in mid-air. God smiles, "A mirror will suffice."