Monday, June 14, 2010
The good, the bad and the ugly
First off, the GOOD:
Bodie came off oxygen entirely Sunday morning and has been on room air since! No nasal canula or anything - YAY! And he is an eating machine - he hasn't eaten this well since before he had c-diff and paraflu! So, he's finally gaining weight again - go Bodie! Also, the immunologist stopped by today and said that although he's waiting for all the tests to come back, as far as he's concerned, the fact that Bodie's still alive and not on the vent after having had Paraflu tells him that his immune system is probably working just fine (scary way to put it, right?) And, Bodie's friend Addie that so many of you have been praying for WENT HOME TODAY! So, definitely lots of good to report today! Praise God!!!
Ok, Now to the BAD and the UGLY all in one:
Well, Bodie's blood infection turned out to be MRSA (medically resistant staff). The hospital's standard protocol for first-time MRSA break-outs is 6-8 weeks of I.V. antibiotics. Yes, you read that right. SUCKY. If Bodie were otherwise stable, they'd probably let him go home on the iv antibiotics and just teach us how to administer it. But Bodie has shown, if nothing else, that when he gets sick, he GETS SICK quickly. So, they're questioning whether he'd even be stable enough to go home before the next surgery. This wouldn't be such a big deal if they could do the surgery as we had tentatively planned, sometime in June/July. The problem is that Infectious Diseases may say he has to be completely done with the antibiotics before his next surgery (you don't want to go on bypass with an active infection since the body does all kinds of crazy stuff on bypass; so the question is whether his would be considered an active infection). In that case, we could be looking at being in the hospital another 9 weeks +. Yes, I may lose my mind if that ends up being the case...at the moment, they don't really know - Infectious Diseases will be working with cardiology over the next few days to figure out their recommended course of treatment.
As for Bodie being stable, he is clinically doing much better, but his BMP is still much higher than it should be (it started to fall but then jumped up again this morning) which means that his heart is just working harder than it should be. Likely due to his infection, but they also did a wean on one of his heart meds yesterday, Milrinone, and it could be in response to that. Either way, Bodie is still not quite where he should be and will be in the CTICU for a while as they figure all of this out.
So, you guessed it, we have LOTS of prayer requests tonight:
1. Pray that Bodie's BMP drops and we know his heart isn't working quite so hard.
2. Pray that the antibiotics are effective so that his blood cultures start coming back negative.
3. Pray that Bodie continues to eat like a madman and gain weight.
4. Pray that the Infectious Disease doctors and cardiologists determine that Bodie does NOT have to do a full course of 6-8 weeks of i.v. antibiotics; or, if they do, that they'll decide he's stable enough to do it at home.
5. Pray that Bodie doesn't catch anything else.
6. Pray for our family, especially Sierra. It breaks my heart that her whole world has changed so much and she doesn't get nearly the attention from mommy that she needs. She's having a rough time with the fact that this has now been going on for 4 months and there's really no end in sight. Pray that we would find more people who could sit with Bodie so I could spend more time at home with Sierra and distribute myself a little bit more evenly between the two kids.