Well, it appears we have hit the terrible teething stage - at least that's what we hope it is. Bodie hasn't eaten well all day and has screamed bloody murder most of the time while eating. I somehow managed to get well above our goal of milk into him, but it was a loooooooooong and slow process. Since he is otherwise pretty happy and smiley, drooling like a madman, shoving his hands in his mouth at every available opportunity and a tooth broke through a couple of days ago, we're really hoping this is just teething. He had an appointment with his cardiologist this morning and she says all looks great with his heart (well, to be honest, she said he had forgotten how weird his heart is (besides being hypoplastic, the one ventricle he does have is abnormally thick and the right atrium is a bit enlarged), but it's no weirder than it's always been and as far as Bodie goes, everything looks great). Since he looked so good and has been satting fine all day, she says we can watch him for 24 hours or so and see if his eating picks back up. Please pray that it does - if it doesn't, back to the ER we go and I'm sure they'll admit him given his history. :-( PLEASE pray little man wakes up happy and ready to eat!!!
Oh, and have we mentioned how much this guy likes his meds? Takes most of them like candy. We're very lucky considering how many meds this poor kid is on. His favorite one (and the one in the picture) is his Digoxin...
My baby! I LOVE YOU SO MUCH! You are the cutest thing, ever! I love your teething pictures. We are praying for you and will keep praying for you even in Sweden. God bless you, my love. Kisses: Nairi and familyReplyDelete
I love Bodie and I seeing him at home and happy. It is so heart warming.ReplyDelete
He looks so much happier at home. I am so happy for you that he loves his medicine. Hope loves her little baby aspirin. Now that she has a couple teeth we don't put it in the syringe...just cut it and put it in her mouth...it is her favorite. I am praying he will eat like crazy and no more ER visits.ReplyDelete
I'm so thrilled that you are all together at home again! I remember what a joyous occasion that was for us when we finally got to bring Hayden home. We'll continue to pray that Bodie stays free from illness and complications. Thinking of you guys always! What you said about heart Mom's in an earlier post was SO true!!ReplyDelete
Fellow Heart Mom,
Wow, teeth already! Annette is far behind. He looks so happy at home with his family. I just love your little cuties!!!! Praying for health at your home. Love,ErinReplyDelete
Your son is absolutely adorable and I am glad that he is doing so well. Our daughter was born on February 10th and she has HLHS as well. I showed my husband the pictures of Bodie and I asked him of the actions looked familiar. Our daughter is putting anything she can get her hands on into her mouth. She was treated at CHLA as well. We were probably there at the same time! She is scheduled for the Glenn next month.ReplyDelete