Oh boy was Bodie ever a pistol today. He slept most of the day, but when he was awake, he was MAD! Poor kid was screaming so much, but since he did nothing but cough for the past 3 days, he has totally lost his voice (what little voice he had, that is). It's so sad. I'm sure he's just miserable from being sick, having a sore throat, having coughed too much to get any sleep the night before, not eating, etc.
It turns out he has Paraflu, which is worse than Rhinovirus (the nurse was wrong when she told me that's what he had tested positive for), but it's not as bad as it could be (there are much worse viruses). It definitely explains why Bodie decompensated so badly last week. The cardiologist today said that the bad case of c-diff could've explained what happened last week, but the additional virus explains it even more - almost an aha moment.
I also asked whether it would explain his elevated bnp and they said absolutely. His heart is having to work harder to beat the virus, so can't focus on healing itself. I noticed yesterday that Bodie's heart rate had been 120-130s all day and it had me a bit worried since he usually rides his pacer at 109 or 110 when he's calm. It was back down to 109 today - the docs said that's a good sign that he's getting over the virus.
Good news is that this virus usually only lasts 2-3 days to a week. While he's going through it, they'll keep him on the milrinone and some supplemental 02. Once he gets to the other side of it (maybe as early as tomorrow - as we know, it's up to Bodie), they expect to wean him off everything.
So tonight, please pray for the following:
1. Pray that Bodie is past the worst of the virus and starts on the healing side of things.
2. Pray that he turns around enough to be weaned off the milrinone and the 02 tomorrow or Friday.
3. Pray that his feeds go well. They started him on Pedialyte yesterday afternoon, but they stopped feeds because he threw up this morning (they're not too concerned since Paraflu can cause that, but they wanted to let him rest, so they stopped feeds all day). They restarted him this afternoon. Please pray that he takes to it well so that they can put him back on breastmilk soon.
Thanks!
Amy
Praying every day for Bodie. I am so glad they finally figured out what's wrong and are working to get him feeling better.
ReplyDeleteMy Bodie. We are praying for you and your family daily! We love you so much!I pray God will heal you and comfort you today. All my love: Nairi
ReplyDeleteI know I don't know you or your family. But, I've been following your blog. And, I have been praying for Bodie everyday! He is such a beautiful, strong baby boy! And, you are such a strong mother! You are inspiring. I'm sending my love and prayers for your family! :O)
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