Thursday, September 16, 2010

Goodbye Glenn head

Wow was today a better day! PRAISE GOD!!! I walked in this morning to find my Bodie back - very content and smiley, with a normal size head - YAY! He ate great today, gave me a fair amount of smiles and actually laughed once. He's still fussy from time to time (it takes a couple of weeks for them to get completely used to the new pressures from the Glenn), but it was miles better than yesterday! YAY!

A few pics from today:
A few smiles

Finally getting some much needed sleep with monkey

And more sleep with monkey

Just hanging out

Our meds are all set for home - the only thing we're still working on is getting him down off of oxygen. He's now down to 1/8L and we tried 3 times today to get him off of it completely and he was totally uncooperative, desatting quickly into the low 70's and high 60's. So their goal for tonight is to get him off of oxygen - please pray that they can do it!

Townes had his chest closed today and tolerated it really well. Praise God! The challenge they are finding now is how to sedate him enough that he doesn't try to self-extubate and thrash around, but not so much that he doesn't breathe. They want everything to start working again (heart, lungs, kidneys, etc.), so he can't be too heavily sedated. PLEASE pray for Townes tonight - pray that they find the magic sedation formula that works for him so he can be on the road to recovery!!!



  1. Bodie looks so great!! You are an amazing mother!!! Keep up the good work. Kisses to you all and many prayers Jean-Marie, Liam's mom

  2. He looks wonderful Amy!!! That picture of him spooning with Monkey is beyond precious. Praying for all of you today that Bodie can kick that cannula's tush. How is Sierra doing?

  3. Uh, are those baby leg warmers?? I just want to eat the boy up! So darling!!!

    I cannot tell you how happy it makes me to see Bodie is progressing through his Glenn so very well! And for the record, we were stuck in the PCICU after Chase's Glenn with no beds available on step-down, so we were dc'd from the PCICU! Sometimes it's nice to "skip" a step... Makes ya feel like you're ahead of the game!

    Go, Bodie!!!!!

  4. My gorgeous Bodie. We have been praying for you and Townes every day. I hope you are feeling better. I can't wait till you are home safely. I love you, peanut! Sleep with angels tonight, my love. I love you. Nairi, Michael and your friends... :o)

  5. Hello Bennett Family & a special Hello to baby Bodie:) we have been following your journey for quite some time and keeping close tabs on you since your surgery but been unable to write you messages as the hospital my little HLHS peanut was in had blogs blocked on their wireless internet so we couldnt see your page, just read the posts through the email. You are such a little rockstar being only on oxygen now!!! Hopefully you will be home soon having mom,dad, & Sierra taking good care of you!!! we pray for you every night and hope you stay on the fast track outta there. Take Care~ Tanner Kali & Jozie (HLHS) Kiecker